Resource Center at SCVMC

 

Spinal Cord Injury Information Network - University of Alabama at Birmingham ( www.spinalcord.uab.edu )

 

Information on a variety of issues relevant to SCI including medical, psychosocial, equipment/accessibility, SCI InfoSheets available for download on selected topics related to SCI including: Locating Information About SCI, Sexual Function, Personal Care Attendants, Wheelchair Selection, Bowel and Bladder Management, Respiratory Issues, Adjust to Injury, and more. The Secondary Conditions of SCI Health Education Video Series is available at this website for download or to watch in streaming Real Media.

 

Shepherd Center ( www.myvitalconnections.org )

 

This website offers education modules featuring educational topics related to spinal cord injury at two different levels, for both patients/families and healthcare professionals. Topics include Autonomic Dysreflexia, Bowel and Bladder Care, Skin Care, Coping and Adjustment, Sexuality, Special Concerns and Safety Issues. Many of the modules are available in Spanish.

 

Christopher and Dana Reeve Foundation Paralysis Resource Center ( www.paralysis.org )

 

Information on various conditions related to paralysis, such as bowel and bladder care, pain management, sexual health, spasticity, skin care, wheelchair seating, home modifications, sports, travel computer use. as well as information on insurance, MediCare reimbursement, and other topics related to the health care system. Short video programs covering a variety of topics related to paralysis can be accessed via this site. The Paralysis Resource Guide is available for download, as well as links to SCI related information in Spanish, Vietnamese, Hindi, Japanese, Chinese and Korean.

 

University of Miami School of Medicine ( http://calder.med.miami.edu/pointis/sciman.html )

 

PoinTIS website provides comprehensive information on spinal cord injury rehabilitation for healthcare providers, patients and families including an interactive tutorial (KIT - Knowledge Based Information Tutorial) covering a variety of SCI related issues. The SCI Handbooks for Patients and Providers is an online manual (two levels are available for patients/families, and healthcare providers. These manuals serve as a comprehensive, readily accessible, easily updated electronic resource that can be used by the rehabilitation team, patients and family to support patient care and education.

 

National Spinal Cord Injury Association Resource Center ( www.spinalcord.org )

 

The NSCIA's website includes a separate section with information and resources specifically for individuals who have sustained new or recent spinal cord injuries and their families. Addresses topics such as Basic SCI Information, Selecting a Rehabilitation Center, and Healthcare Benefits and Rights, and research pertinent to those with new injuries.

 

Craig Hospital ( www.craighospital.org/SCI/educationalTracts.asp )

 

Craig's website offers 45 online educational brochures related to spinal cord injury appropriate for both healthcare providers and patients/families covering a vast selection of topics including from Bowel and Bladder Problems, Incomplete SCI, Skin Care, Spirituality, Upper Extremity Pain, Interacting with Your Doctor, Understanding Research, Caregiving, and Home Safety. Printed versions are also available in Spanish and can be requested via e-mail link on the website.

 

Medline Plus - Spinal Cord Injuries ( www.nlm.nih.gov/medlineplus/spinalcordinjuries.html )

 

The Medline website features an interactive tutorial (also available in Spanish) on Spinal Cord injury, as well as links to other websites containing information relevant to SCI such as diagnosis, treatment, rehabilitation, adjustment, research and clinical trials, bowel, bladder and skin care.

 

The Miami Project - University of Miami School of Medicine ( www.themiamiproject.org )

 

The Miami Project is a comprehensive SCI research center which focuses on innovative approaches to meeting the challenge of repairing the damaged spinal cord. The Miami Project's website features n-line paralysis support information including General Information on SCI, Resources for Living with Paralysis, Care and Treatment of SCI, and Frequently Asked Questions. One of the Miami Project's specialized areas of research is in male fertility following SCI.

 

Spinal Cord Injury - For Your Information Resource Directory (SCI-FYI) - Rehabilitation Research Center @ Santa Clara Valley Medical Center ( www.tbi-sci.org/scifyi )

 

The SCIFYI provides information on hundreds of resources relevant to individuals with spinal cord injury, families and friends in the Santa Clara Valley and beyond. Resources included are: Alcohol and Chemical Dependency Agencies, Day Treatment Programs, Housing and Independent Living Organizations, Parenting and Family Resources, Financial Aid and Assistance and Support Groups, and more. Available for download (PDF) or viewing by chapter or in its entirety.

 

University of Alabama at Birmingham Traumatic Brain Injury Model System ( www.main.uab.edu/tbi )

 

Provides information on a variety of issues relevant to TBI, including Information Sheets and Rehab Tip Sheets, which are available for download on issues including: Changes in Emotions Following TBI, Cognitive Difficulties, Management of Behavioral Problems, Post Traumatic Seizures, Wheelchair Positioning, and more. The UAB Home-Based Cognitive Stimulation Program is available for free at this website and provides activities designed to assist the individual in recovery of their thinking skills following brain injury. Caregiver's Guide to Self-Health is an interactive program designed to empower caregivers with techniques to help improve their health and quality of life by solving problems and reducing stress.

 

Shepherd Center ( http://www.myvitalconnections.org/ )

 

This website offers education modules featuring topics related to traumatic brain injury at two different levels, for both patients/families and healthcare professionals. Topics include Cognitive and Behavior Issues, Affect and Emotion, Family Issues, Bowel and Bladder Care, Seizure Care, Medications, and Dual Diagnosis (TBI/SCI). Many of the modules are available in Spanish.

 

Traumatic Brain Injury Resource Directory (TBIRD) Rehabilitation Research Center @ Santa Clara Valley Medical Center ( www.tbi-sci.org/tbird )

 

The TBIRD provides information on hundreds of resources relevant to individuals with brain injury, families and friends in the Santa Clara Valley and beyond.Resources included are: Alcohol and Chemical Dependency Agencies, Day Treatment Programs, Housing and Independent Living Organizations, Parenting and Family Resources, Financial Aid and Assistance and Support Groups, and more. Available for download (PDF) or viewing by chapter or in its entirety

 

Traumatic Brain Injury National Resource Directory ( www.nrc.pmr.vcu.edu )

 

The Virginia Commonwealth University website provides practical information for professionals, persons with brain injury and their families, friends and caregivers.Free resources available for download include newsletter articles on topics ranging from "What Happens to Relationships After Brain Injury", "Strategies for Remembering Names", "Understanding Your Emotions", and "Managing Stress Effectively After TBI".Features "Chat with Pat" where an expert on TBI confidentially answers your personal questions about TBI with compassion and practical advice.

 

Craig Hospital ( www.craighospital.org/TBI/healthAndWellness.asp )

 

Craig's website offers online educational brochures on 7 subjects related to TBI covering a selection of topics including: Understanding Medical Articles, Fatigue and TBI, Social Communication, Exercise and Your Brain, Survival After TBI, Environmental Barriers, and Cognitive Rehabilitation.. Brochures are available in s short, easy version, or more detailed version. Printed versions are also available and can be requested via e-mail link on the website.

 

Brain Injury Association of America ( www.biusa.org )

 

BIAA is a leading national organization offering information, support and advocacy to individuals with brain injury, families and professionals. The BIAA website provides information on Living with Brain Injury, Types of Brain Injury, Brain Maps, information on treatment and rehabilitation (including sections on what to expect at each phase of TBI,from ICU to Community Re-entry).

 

Medline Plus - Traumatic Brain Injuries ( www.nlm.nih.gov/medlineplus/traumaticbraininjury.html )

 

The Medline website features an interactive tutorial (also available in Spanish) on traumatic brain injury, as well as links to other websites containing information relevant to TBI such as anatomy and physiology, clinical trials and research, rehabilitation and recovery, and links to TBI related directories and organizations. Information is available in multiple languages including Spanish, French, Hindi, Japanese, Korean, Russian, Somali and Ukranian.

 

BrainLine - Defense and Veterans Brain Injury Center ( www.brainline.org )

 

BrainLine provides information on preventing, treating and living with TBI for individuals with TBI, family and friends, and professionals. The website incorporates an "Ask the Expert" feature, as well as personal stories and videos of TBI survivors, and information on a variety of TBI related topics. Excellent video and multimedia resources relevant to TBI,including webcasts by experts in the TBI field. Available in Spanish.

 

National Stroke Association ( www.stroke.org )

 

Provides information on a variety of issues relevant to stroke, many of which are which are available for download, including: Life After Stroke, Stroke Rehabilitation, Stroke Support Groups, Clinical Trials for Stroke Survivors, and Recovery Fact Sheets covering topics such as Bowel and Bladder issues, Coping with Emotions, Health Insurance, Sexuality and Social Support. Specific information and resources for not only stroke survivors, but caregivers and families, women affected by stroke, and kids and stroke. Stroke Smart is an on-line magazine, which is an excellent resource and provides information on medical developments and breakthroughs, as well as inspiring stories from stroke survivors. Features an On-Line Education Program which includes a series of web presentations covering a variety of issues relevant to stroke for survivors and families. Also available at this website is the National Stroke Association Resource Directory. Many resources available in Spanish.

 

American Stroke Association ( www.strokeassociation.org )

 

This website serves as an excellent resource for stroke survivors and their families to help understand the effects of stroke and what can be done to maximize recovery and independence after stroke. Information and education is provided on topics such as the effects of stroke, stroke treatment, and dealing with the physical, emotional, behavioral and cognitive challenges after stroke. Information and resources for family caregivers, locating a local support group, and on-line support options is also available. Stroke Connection brings information and inspiration in either print or electronic format. This magazine provides in-depth information on conditions such as aphasia, central pain, high blood pressure and depression, as well as tips for daily living from healthcare professionals and other stroke survivors.

 

National Institute of Neurological Disorders and Stroke (NINDS) ( www.ninds.nih.gov/disorders/stroke/stroke.htm )

 

The NINDS website offers online information on the effects of stroke, relevant stroke organizations, and available clinical trials. Publications include: What You Need to Know About Stroke, Stroke Rehabilitation Information, Stroke: Hope Through Research, among others. Information is available in Spanish.

 

The Internet Stroke Center - Washington University St. Louis School of Medicine/UT Southwestern Medical Center ( www.strokecenter.org )

 

Independent web resource for about stroke care and research - targeted to patients and families. Information on stroke diagnosis and treatment, such as lab tests, procedures, diagnostic imaging and medications, finding an accredited stroke center. Features a link to search for clinical trials by location, and helpful information for caregivers such as tips for caring for an individual with aphasia. Publications available include Stroke Recovery Guides, Home Modifications, and Stroke Assessment Scales.

 

The Stroke Network ( www.strokenetwork.org )

 

On-line stroke support and information group that features a network of websites woven together to provide stroke support and information. Individuals can browse through message boards as a guest or register if they want to post questions. Featuring a Stroke Caregiver Handbook that provides tips to caregivers for advocating for their loved one through stroke diagnosis and recovery, as well as information on types of stroke, Stroke Recovery and Rehabilitation, Statistics, Tests and Diagnosis and links to other helpful websites relevant to stroke.

 

Stroke Awareness Foundation ( www.strokeinfo.org )

 

Features information on the latest clinical trials for individuals post stroke, Stroke Facts and other Bay Area resources including Post Stroke information and support such as a listing of community-based post stroke services.

 

Mayo Clinic ( www.mayoclinic.com/health/stroke/DS00150 )

 

Comprehensive overview of stroke including symptoms, causes, treatment., tests and diagnosis, coping and support, as well as multimedia content on ischemic stroke and carotid angioplasty and stenting. Resources including Comprehensive Review of Dysarthria also available.

 

Medline Plus - Stroke ( www.nlm.nih.gov/medlineplus/stroke.html )

 

The Medline website features an interactive tutorial (also available in Spanish) on stroke, as well as links to other websites containing information relevant to stroke such as anatomy and physiology, clinical trials and research, rehabilitation and recovery, nutrition, and links to stroke related directories and organizations. Information is available in 17 languages including Spanish, French, Hindi, Japanese, Korean, Russian, Somali and Ukrainian, Arabic, Portugese and Tagalog.